Who owns data from a PROMIS instrument?
  

The study team owns all data collected using PROMIS measures.  The PROMIS network makes no claim to any data collected using PROMIS measures.  There is a statement in the PROMIS Terms and Conditions that encourages researchers to provide a summary report to allow the PROMIS network to know about how the measures are being used in various study paradigms:
Users of PROMIS tools are strongly encouraged to submit a brief report including sample demographic information, clinical data sufficient to define the sample without indicating treatment response data, and promis score distributions (e.g., baseline mean and standard deviations or change scores blinded to treatment information). This brief report should be submitted to help@assessmentcenter.net for internal review. None of this submitted information will be published without the written consent and participation of the submitter.    
  
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