The study team
owns all data collected using PROMIS measures. The PROMIS
network makes no claim to any data collected using PROMIS
measures. There is a statement in the PROMIS Terms and
Conditions that encourages researchers to provide a summary report
to allow the PROMIS network to know about how the measures are
being used in various study paradigms:
Users of
PROMIS tools are strongly encouraged to submit a brief report
including sample demographic information, clinical data sufficient
to define the sample without indicating treatment response data,
and promis score distributions (e.g., baseline mean and standard
deviations or change scores blinded to treatment information). This
brief report should be submitted to help@assessmentcenter.net
for internal
review. None of this submitted information will be published
without the written consent and participation of the
submitter.